Apologies for the big gap between Blog entries!
The good news is that Elizabeth has put on weight really nicely over the last couple of weeks, so it looks like we have seen the last of her NG tube (at least until after her op when she may need one for a few days). She is still being driven mad by the oxygen cannula, but at least that can be taken out twice a day while she is weaned off the O2. She is now off for two blocks of three hours every day. It is so lovely to see her without tubes for such a long period of time and she is so easy to carry about!
She rolled on to her side without any help yesterday for the first time. Rolling isn't easy when you have a big lump altering your centre of gravity, but she loves it. I also put her on her tummy every day, but that isn't quite so successful. However, we must persevere.
No news on the date for her op yet...
Chloe is still enjoying her new school. She is learning Spanish and all about houses. As a result she shouts such things as "Look, Senorina, a terraced bungalow!" much to my surprise. She has also lost one of her bottom teeth and is very thrilled to be so grown up. She seems to be making friends very well and enjoyed her first Hexham East party last week.
J
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4 comments:
Memories of 'Yonder is the policeman's bicycle'!
Love,
Sue
Hello French family!
I am Gillian,a friend of Andy's sister Liz - Janie, I met you in Hexham when I was satying with my pal, Jan. And you worked at the BBc at the same time as my ex, Tim Jenkins
I hope you don't mind me writing but I have only just got details of this blog from Liz (an earlier email went astray)and have read the whole story of your brave
girl(s)in one sitting. And I wanted to send my best wishes and congratulations
I hadn't heard of exomphalos before and am awestruck at the skill of the doctors - and at how upbeat you have all been since May.
I spent most of the summer in Northumberland, and will be 'up there' again at half term. I am not sure if it's OK to give an email address on this site so I won't - but I'll be following Anna's progress and thinking of you all.
Maybe we can meet some time when I am in Haltwhistle - the north east is my second home these days and when you have more time I'd love to see you all (Andy I met you at Michael's christening - now that was a long time ago!)
We go into Hexham a lot, and Jan works there at the Rainbow Trust respite holiday home on the edge of the town.
I am so happy that things are now seeming to be so much brighter for you all
Love
Gillian
Hi Gillian,
Thank you for writing - it's been lovely to hear from people who we may know only slightly but whose compassion and care shine through.
We would love to see you when you're next in the North East - when I next speak to Liz I'll ask her to pass on our details.
Love
AJ&E
Hi there, what a fine fighting family you are! The photos of your gorgeous girls are a treat. Georgina loves the Blog and is often convinced that all small babies are baby Anna. We may be coming back within the next 6 months to see Joanna, who is planning a trip to Elwick with her two boys. I´ll definitely be in touch. Take care of yourselves and love to Lesley when you see her. Love, Julia and georgina. xxxxx
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