Hi everyone,
I'm sorry that I haven't been updating the blog - it's partly down to the school holidays and partly because there has been mercifully little to report on Elizabeth.
Elizabeth has been doing really well and everyone keeps commenting on how healthy she looks these days (as you can see from the photo). Her new regime of meds really seems to be working and I also think that the damp summer has helped - I may be the only woman in England who was grateful for all that rain.
A and I are starting to relax, finally, and to believe that the worst is over. A is going to try out a couple of sessions at playgroup next month and I am starting to do some work from home (as a market research transcriber if anyone needs one!). We are enjoying a social life together, which is something of a novelty.
We has a real treat last week as we finally got to meet an exomphalos baby other than Elizabeth! Her name is Grace Campbell and she lives in Edinburgh with her lovely parents, Gen and Mike, who are Australian. Grace was treated in the same way as Elizabeth (conservatively) and is almost the same age, so they have an awful lot in common. It was also really great to finally meet Gen, who has been an enormous support to me via Geeps.
Elizabeth is coming on really well developmentally. She's still very small for her age and very slim, but she is chatting away happily and is a very sociable little thing. She can count up to twelve thanks to tutoring from her big sister. Chloe and Elizabeth are very much in love with one another and have lots of fun - long may it continue!
J
xxx
3 comments:
great to read that all is going well.
cheers
Howie xxxx
How lovely to see Anna looking so well - makes up for the absence of news over the summer!
The climate here is very humid, things get mildewed/rusted before you can turn round. A St Lucian friend who visited England last year said that he went jogging in the local park but found it very hard to breathe because the air was so dry.
Answer: move to the tropics! If, that is, you could find anywhere offering the exceptional healthcare that you have received courtesy of the NHS.
Crossed fingers that things stay good for you all.
Much love,
Sue (St Lucia)
Hi, i have just found your Blog through GEEPS website. Hope your little girl is feeling better right now. Our baby has just been diagnosed with Exomphalos, and we are waiting to get results of CVI to exclude any chromosome abnormality. Reading happy stories on GEEPS website is really helping with coping with this situation, so thank you for sharing your story :)
Maggie
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