Here we go again...

A belated entry... Anna was taken into hospital again on Wednesday night. The usual trouble - a runny head cold rapidly whizzed down to her chest as a nasty infection, meaning she needed oxygen, nebuliser, strong antibiotics and to be monitored very carefully. She was very poorly yesterday (Thursday) but looked a lot better today. We're hoping she'll be able to come home tomorrow or Sunday latest.

Ella and Anna are really good friends and playmates now so Ella's been very sad about being away from her little sis, as well as missing Janie who's staying at the hospital. Whatever happens we're visiting tomorrow though.

And it was all going so well... !

Anyway, we've been told to expect this kind of thing for the next couple of years, so I guess we'll just have to get used to it.

On a happier note, happy birthday to my lovely big sis Alison!!

Ax

Scan results

Hi,

We got the scan results for Anna today. Thankfully she does not have vascular ring and won't need an op. Hooray!

However, she does have emphysema plus some quite extensive scarring on her left lung. Neither of these are reversible and they have reduced her lung function permanently, but at least we now know the full extent of her problems. The respiratory team have put together a plan to keep her well as much as possible this winter and we also have a 'Golden Ticket' giving us instant access into the RVI.

I managed to have a quick chat with our number one hero and top surgeon, Mr Bruce Jaffray. He has a huge smile on his face every time he sees Anna.

Janie
x

Walkie Talkie

Hi,

Anna took her first steps yesterday! It has taken her longer to get there than some children because of her weak tummy muscles so we are truly thrilled.

Janie