Results

Hi,

We are not staying overnight in the RVI as Anna pulled her PH probe out on the way down from theatre, so we are back in Hexham. Hooray!

The good news is that the doctors were able to find out what is causing Anna's respiratory problems. She has tracheomalacia and bronchomalacia. I know that most of you will Google this, so a very quick explanation is that her trachea and the airways in her lungs are the wrong shape. They tend to hold onto infection more readily as a result.

She may also have something called vascular ring and that will be checked in a CT scan under anesthetic in a month or so. She would need an op to correct that.

We will get the blood results back soon. We know that she doesn't have cystic fibrosis which is obviously fantastic news.

We have been told to expect another rough couple of years with Anna. However, she should slowly grow out of the tracheomalacia and bronchomalacia. We have decided to take our holidays in the UK within striking distance of a major children's hospital until she is four or five, so at least the environment will benefit!

Janie
xxx

PS: Ella took daily swimming lessons this week and can now officially swim! You can see above her first ever swimming certificate and badge (five metres).