Weds 15th June

Hi All,

Sorry for the lack of updates - there hasn't been much to report in the last couple of days, other than that Elizabeth is still doing well. Her diet now consists principally of breast milk, with a few feeds a day of a high-calorie powdered milk. As she uses a lot of energy breathing and growing new skin on the exomph, she needs more calories than usual. As she usually falls asleep part way through the bottle (because she loves the cuddle so much!) we end up getting the rest down the naso-gastric tube. The upside is that she's very rarely sick!

The big news today is that they're letting us out for a trip home at the weekend. This is a great sign of progress. We will probably have Elizabeth home from Saturday noon to Sunday noon. It will be lovely to be a whole family in our own house, even if for just a day. Mind you, that'll probably be enough for a first visit home - there being no doctors or nurses just down the corridor...

That's all for now. I'm worn out, having been frantically cleaning up the pram that's been in the shed for a couple of years - and trying to work out how the damned thing folds up to get into the car!

Axxx