Well, we've just had a lovely family weekend together in Newcastle - my mum & dad brought Ella in on Saturday morning en route back to Scotland (many thanks again you two!) and Ella and I got back to Hexham this evening, in preparation for school and work respectively.
Anna is still doing well; she's had three baths now and seems to really enjoy them. The exomph doesn't exactly look pretty but is coming along very nicely, thickening up and with new skin growing slowly but surely. The nurses paint it with Flamazine every couple of days after her bath and before applying the dressings; designed to promote skin growth, it's most commonly used with burns victims. Sadly Anna doesn't enjoy having the exomph dressed quite as much as she enjoys the bath that precedes it!
Anna is now getting all the milk she needs from Janie, albeit mainly via her NG (naso-gastric) tube. We're persevering with bottle-feeding, with some limited success today; however, limited progress here would not be a show-stopper in terms of getting Anna home. On that subject, we have a case conference with Anna's consultant, the Sister from ward 4, and our community paediatric nurse on Thursday to discuss next steps. While we're keen to get Anna home, it must be when we're all confident that it's the right time. For example, Anna's still got a nasal cannula giving a tiny bit of oxygen and this could be difficult to manage at home. The nurses are going to try to reduce this oxygen further tomorrow with the eventual aim of removing the cannula. We also need to consider what support we can get in Hexham - eg how Janie would manage with Anna and getting Ella to school, what do we do in case we're worried about anything, etc. All questions for Thursday - and we're mighty glad that we are in a position to even think about bringing her home!
Enjoy the pics below.
Axxx
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